Family First: Lily's Luau

Posted: Friday, January 8, 2010 --- 4:16 a.m.

OK people, it's time to forget about the ridiculously snowy conditions and put on a grass skirt and lei.

In today's family first... how a local family's battle with a common disease has inspired a fabulous, tropical party.

"She'd be walking around and she'd just fall to the ground. "

Today, 14 year old Lily Giroux spends her afternoons at the skating rink near her home, no matter the weather.

But when she was two, she was diagnosed with what are called atonic seizures.

"Most people think of seizures as just the grand mal and of course that's one kind and it's a devastating kind but there are dozens of other kinds, too. "

Lily is on medication and has a vegas nerve stimulator that was surgically implanted a couple years ago.

Her seizures are under control today - but her parents are looking for the cure.

" We were always looking for the future research in epilepsy and we were pretty surprised to find it less than a mile from our home so we got very interested in it for that reason. "

Her parents started Lily's Fund for epilepsy research after they read about the progress happening right here in Madison.

Three neurology researchers discovered something called 2dg.

It has the potential to calm seizures and it will soon be in human trials.

"Our hope is that new treatments and maybe even a cure can come right here out of the UW."


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