Posted: Wednesday, May 28, 2010 --- 4:37 a.m.
In Family First, a brave young girl is teaching her classmates and friends about a disease that won't stop her from pursuing her dreams.
" Some people don't want to talk about it and some people don't even want to say they have it. "
6th grader Anna Jordal wants to talk about epilepsy.
It was only a year ago she had her first seizure.
And just last week she gave a power point presentation to her classmates at Kromrey Middle school in Middleton.
They now know what to do if Anna has a seizure .
And they understand why she's wearing this in class, an EEG to monitor her brain activity.
" ...It is terribly common. And it's for some people it's incurable. It can be so severe and they just can't cure it."
Anna hasn't been cured but after trying four medications, they found one that worked for her.
There are dozens of kinds of seizures ... Anna's mom Deb describes what happened to her when she had her first one last January.
"She was playing video games w/ her brother and she stopped functioning ... he said if you're not going to play we'll just go upstairs and they started to go upstairs when she bumped into the wall so he came and got us and her eyes were fixed in one direction and she couldn't speak.. "
This happened once a month for several months ... then up to once a week, for about 3-5 minutes.
It's not happening anymore, but they are monitoring Anna at school to find out if she's having seizures that she's unaware of.
" More people know about it and probably more people will probably want to help raise money ... to find a cure that will work. "