Selected Community Events
Wine & Art for GBS
Oct 11, 2014 12-3pm
Fawn Creek Winery Wisconsin Dells, WI
The goal for my first fundraiser is to raise as much money as possible for the GBS-CIDP Foundation International for research and those that are less fortunate.
Guillain Barre Syndrome (GBS) is an auto-immune disorder that affects the peripheral nervous system. It is a rare disorder that attacks the nerves, which usually starts out with tingling and weakness in the extremities. These sensations can quickly spread, eventually paralyzing the entire body. Most people with this condition need to be hospitalized to receive proper treatment. The cause of GBS is unknown,
but is often preceded by an infectious illness such as respiratory infection or the stomach flu. Treatment
for GBS is IVIG (high dose Immunoglobulin therapy) and Plasmapheresis. The recovery time for GBS is different for every patient and can range from days, weeks, months, and even years. I was diagnosed with GBS on March 23rd
at UW-Hospital in Madison for 2 months. I was diagnosed by a spinal tap which illustrated my cerebrospinal fluid protein being higher than normal. A nerve conduction velocity test (NCV) was also done following the diagnosis, which illustrates slower signals travelling along the nerves. Over a
short amount of time (Approximately 2 days), GBS had affected my respiratory system which caused my lungs to collapse. I was placed on a ventilator for 5 1⁄2 weeks. While vented, I was placed into an induced coma for 3 weeks to allow my body to rest. Doctors started out by giving me 4 rounds of IVIG treatment, which didn’t show any sign of positive change. They decided to place a clavicle port for
plasmapheresis exchange. I received 7 rounds of plasma exchange and soon after the 5th to show signs of movement—was it the plasma or my fight for life? Doctors, nurses and I will never know. I came home to recover in May 2010 and started out-patient rehabilitation including speech,
occupational and physical therapies which lasted approximately 4-5 months. I have been blessed with a positive recovery and have become a Liaison for the GBS Foundation in the Madison area. I provide support, literature and patient visits to help those affected by this debilitating
Emily (Knapp) Fruik 708-710-7334
Aug 23, 0014 10:00 AM
Vilas Park, Madison WI
5K Run/2K Walk to benefit Huntington's Disease patients in the area. Snack and silent auction to follow event. T-Shirt included with $30 run fee or $5 walk donation
Michelle Gygax, 414-588-6109, email@example.com
Kolor for Kids FunFest
Aug 23, 2014 8:00am to 1:00pm
Grand Rapids Lions Club in Wisconsin Rapids, WI
Get ready to Kolor your world and change a child's life!! Registration will be open March 24th for the 3rd Annual Kolor for Kids FunFest, sponsored by Element Mobile benefiting Children’s Miracle Network. This colorful event will feature a day full of fun for all ages.
Kolor for Kids FunFest will be held at the Grand Rapids Lions Club on Saturday August 23, 2014. The 5K Run/Walk will begin at 10 a.m. Participants will start wearing white and end sprinkled in an array of fabulous colored cornstarch powder.
For a complete list of activities and 5K registration information, go to www.kolorforkids.com.
Katy Zaleski- Katherine.Zaleski@ministryhealth.org