Selected Community Events
Wine & Art for GBS
Oct 11, 2014 12-3pm
Fawn Creek Winery Wisconsin Dells, WI
The goal for my first fundraiser is to raise as much money as possible for the GBS-CIDP Foundation International for research and those that are less fortunate.
Guillain Barre Syndrome (GBS) is an auto-immune disorder that affects the peripheral nervous system. It is a rare disorder that attacks the nerves, which usually starts out with tingling and weakness in the extremities. These sensations can quickly spread, eventually paralyzing the entire body. Most people with this condition need to be hospitalized to receive proper treatment. The cause of GBS is unknown,
but is often preceded by an infectious illness such as respiratory infection or the stomach flu. Treatment
for GBS is IVIG (high dose Immunoglobulin therapy) and Plasmapheresis. The recovery time for GBS is different for every patient and can range from days, weeks, months, and even years. I was diagnosed with GBS on March 23rd
at UW-Hospital in Madison for 2 months. I was diagnosed by a spinal tap which illustrated my cerebrospinal fluid protein being higher than normal. A nerve conduction velocity test (NCV) was also done following the diagnosis, which illustrates slower signals travelling along the nerves. Over a
short amount of time (Approximately 2 days), GBS had affected my respiratory system which caused my lungs to collapse. I was placed on a ventilator for 5 1⁄2 weeks. While vented, I was placed into an induced coma for 3 weeks to allow my body to rest. Doctors started out by giving me 4 rounds of IVIG treatment, which didn’t show any sign of positive change. They decided to place a clavicle port for
plasmapheresis exchange. I received 7 rounds of plasma exchange and soon after the 5th to show signs of movement—was it the plasma or my fight for life? Doctors, nurses and I will never know. I came home to recover in May 2010 and started out-patient rehabilitation including speech,
occupational and physical therapies which lasted approximately 4-5 months. I have been blessed with a positive recovery and have become a Liaison for the GBS Foundation in the Madison area. I provide support, literature and patient visits to help those affected by this debilitating
Emily (Knapp) Fruik 708-710-7334
1st Annual Independent Living Golf Outing
Sep 22, 2014 10:30am
Hawks Landing Golf Club, 88 Hawks Landing Circle, Verona
Enjoy a day of great camaraderie, food and golf! Independent Living is a local nonprofit that has been helping seniors and adults with disabilities for 40 years. With financial support from the community, Independent Living is able to serve more adults with in-home care, home health care and housing options. Golf fees--$200 individual, $800 foursomes--cover registration, golf cart, lunch, reception and gift bag. Sponsorships available. All proceeds benefit seniors and adults with disabilities in Dane County. Register at http://bit.ly/ILIGolfOuting
Nicole Schultz, 608-268-9631, Independent Living, Inc.
Java Jive 2014 - 19th Annual coffee tasting event to benefit the Rape Crisis Center, Madison’s most relaxed fundraiser
Oct 5, 0014 9:00 am to 12:30 pm
The Brink Lounge 701 E. Washington Madison, WI
Java Jive is the Rape Crisis Center’s signature fundraising event of the year, featuring a coffee tasting, brunch, silent auction, and raffle donated by local businesses. The event also features live jazz from the Jan Wheaton Duo.
For more information and to register: http://www.danecountyrcc.org/news/index.php?category_id=4858
For questions, contact 608-251-5126 or email firstname.lastname@example.org