Locals travel to DC for Down syndrome Congress hearing

Published: Nov. 5, 2017 at 6:26 PM CST
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One family from Mount Horeb traveled hundreds of miles to Washington D.C. to voice their support for people with Down Syndrome.

"He gives us all purpose," Katy Krantz-Hager said about her brother , Michael.

Michael Krantz is 23-years-old and has Down syndrome.

Katy and him were flown out to Washington D.C. by Global Down Syndrome Foundation on Oct. 25. They spoke to their State Representative Mark Pocan about why there needs to be more funding for Down syndrome research. They also attended the first ever Congressional hearing for Down syndrome.

"Research for Down syndrome was stagnant for a while but has been steadily declining," Katy said.

The National Institutes of Health reportedly invests $32.5 billion into medical research for Americans. This yea, the Global Down Syndrome Foundation says NIH will invest $28 million in Down syndrome research.

Studies have shown that people with Down syndrome are getting Alzheimers by the time they are 40-years-old, and they don't know why.

Katy says it's important to keep getting funding for the research so they can get answers. Also, she believes there is value in researching why people with Down syndrome get fewer cancers, and have a low rate of coronary diseases.

"It's important to me because people with Down syndrome have the right to a quality life," Katy said.

Katy says the hearing went well on Oct. 25 and she believes their will be some more funding heading towards the research. The decision won't be final until Congress approves the budget.

"I think if everyone knew someone with Down syndrome, then the world would be a better place," Katy said.

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